Join Date: Jan 2010
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My heart goes out to you. I would be devistated if I had to give up sailing.
My daughter may or may not have scleroderma. She definitely has Raynaud's. I feel so helpless. It isn't suppose to be this way. She is only 22. I'm the one who should get it.
I know you wrote for advice, but now I am asking you for help. How long and how many doctors did it take for you to get your diagnosis? The not knowing is very stressful for her.
Thanks and God bless.