Help for Scleroderma/Raynaud's - Page 2 - SailNet Community

   Search Sailnet:

 forums  store  

Quick Menu
Boat Reviews  
Search SailNet 
Boat Search (new)

Shop the
SailNet Store
Anchor Locker
Boatbuilding & Repair
Hatches and Portlights
Interior And Galley
Marine Electronics
Other Items
Plumbing and Pumps
Sailing Hardware
Trailer & Watersports
Clearance Items

Advertise Here

Go Back   SailNet Community > Out There > Cruising & Liveaboard Forum > Living Aboard
 Not a Member? 

LinkBack Thread Tools
Old 01-03-2011
Jeff_H's Avatar
Join Date: Feb 2000
Location: Annapolis, Md
Posts: 6,809
Thanks: 5
Thanked 130 Times in 104 Posts
Rep Power: 10
Jeff_H has a spectacular aura about Jeff_H has a spectacular aura about Jeff_H has a spectacular aura about
My mom had Reynauds for the last 34 years of her life. Ten years of this period she lived on boats. While she was careful to avoid cold, she lived a pretty normal life otherwise. On the other hand she had friends with Reynauds who were going downhill much more rapidly than she. I don't know whether you are a smoker but smoking can greatly accelerate the decline. Staying out of the cold obviously makes a big difference as well.


To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
Curmudgeon at Large- and rhinestone in the rough, sailing my Farr 11.6 on the Chesapeake Bay
Reply With Quote Quick reply to this message Share with Facebook
Old 01-04-2011
bobmcgov's Avatar
Join Date: Jul 2007
Location: Windy Wyoming
Posts: 1,121
Thanks: 0
Thanked 36 Times in 35 Posts
Rep Power: 8
bobmcgov will become famous soon enough
Hi, Cordwainer -- sorry to hear about your Raynauds. Peripheral circulation problems can be downright painful. Several rock climbers I know -- mostly women -- have faced similar issues: cold stone will drain the heat right out of your fingers. Some found relief thru steroidal treatments -- the capillary clamp-down seems to be hormonally triggered -- and thru meditation. That latter sounds goofy, but Raynauds does correlate with limbic responses to stress or anxiety, and meditation has been shown to reduce stress hormones in the blood. So if you have an interest in that line, a regimen of yoga or meditation or tai chi or deep breathing exercises may yield surprising results.

Other climbers have found hot-plunge therapy beneficial in the short- to medium-term. They basically stick their hands (& or feet) into water heated right to the edge of pain. Start at 'very warm' and ratchet up the water temps over time. After a few minutes, pull out your digits, let em cool to room temp, and plunge em again. The intent is to 'teach' your blood vessels to dilate by engorging them with blood over and over. Some think this cycling encourages greater elasticity in the vessel walls. It definitely increases general blood flow to the tissues in your hands and feet, which can accelerate healing and cause more capillaries to grow. Your hands should look bright pink when you pull them out of the hot water -- a sign blood flow has been amped up. Google "Murray Hamlet Raynaud's". And here's a couple informed articles:

Beyond cold feet: painfully cold fingers and toes may signal Raynaud's disease | Vegetarian Times | Find Articles at BNET

Peripheral circulation and cold adaptation in Raynaud's phenomenon - Medical Anthropology | Townsend Letter for Doctors and Patients | Find Articles at BNET

Climbers with tendinitis problems do something similar but alternate hot plunges with ice baths -- again, the idea is to increase blood flow by repeatedly 'calling' for it via temperature variation. Probably the ice baths are not such a good idea w/ Raynauds. Usual advice: ask a doctor if they foresee any harm from experimenting with these techniques before proceeding. Best of luck!
Buccaneer18, Grainnia
SJ21, Diarmuid
Albin Ballad 30, Fionn
Reply With Quote Quick reply to this message Share with Facebook
Old 01-04-2011
hellosailor's Avatar
Senior Member
Join Date: Apr 2006
Posts: 11,300
Thanks: 4
Thanked 128 Times in 125 Posts
Rep Power: 11
hellosailor has a spectacular aura about hellosailor has a spectacular aura about
Cordwainer, I would suggest that keeping warm is literally a matter of life and death for many sports and pursuits, and that the doc who said "give up sailing" needs to get his head out of his, ahem.

Anyone who pursues winter sports can tell you that hypothermia and frostbite can kill. And, how to avoid them by eating properly, dressing properly, etc.

A wool watch cat to keep the head warm and preserve body heat. Wool or silk undercloths to keep the core warm and dry, and allow heat to get out to the limbs. And here in the US, Graber? Grabber? brand heat packs, which generate heat when exposed to air. They make a wide range now, including packs that slip into your gloves and boots, packs that stick to your clothes, great way to supplement body heat when you need it. Then there are also electric socks and gloves and vests, often sold to the snow ski and motorcycling markets.

Give up sailing? Hell no, just sail warm and dry. That's easily possible.
Reply With Quote Quick reply to this message Share with Facebook

Quick Reply

By choosing to post the reply above you agree to the rules you agreed to when joining Sailnet.
Click Here to view those rules.

Register Now

In order to be able to post messages on the SailNet Community forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
Please note: After entering 3 characters a list of Usernames already in use will appear and the list will disappear once a valid Username is entered.
User Name:
Please enter a password for your user account. Note that passwords are case-sensitive.
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:


Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
Thread Tools

Posting Rules
You may post new threads
You may post replies
You may post attachments
You may edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is On

All times are GMT -4. The time now is 04:23 AM.

Add to My Yahoo!         
Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2015, vBulletin Solutions, Inc.
SEO by vBSEO 3.6.1
(c) LLC 2000-2012

The store is owned and operated by a company independent of the forum. You are now leaving the SailNet forum. Click OK to continue or Cancel to return to the SailNet forum.