Help for Scleroderma/Raynaud's - Page 2 - SailNet Community
LinkBack Thread Tools
post #11 of 13 Old 01-03-2011
Jeff_H's Avatar
Join Date: Feb 2000
Location: Annapolis, Md
Posts: 7,425
Thanks: 11
Thanked 235 Times in 186 Posts
Rep Power: 10
My mom had Reynauds for the last 34 years of her life. Ten years of this period she lived on boats. While she was careful to avoid cold, she lived a pretty normal life otherwise. On the other hand she had friends with Reynauds who were going downhill much more rapidly than she. I don't know whether you are a smoker but smoking can greatly accelerate the decline. Staying out of the cold obviously makes a big difference as well.


To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
Curmudgeon at Large- and rhinestone in the rough, sailing my Farr 11.6 on the Chesapeake Bay
Jeff_H is offline  
Quote Quick Reply Share with Facebook
Sponsored Links
post #12 of 13 Old 01-04-2011
bobmcgov's Avatar
Join Date: Jul 2007
Location: Windy Wyoming
Posts: 1,142
Thanks: 0
Thanked 39 Times in 38 Posts
Rep Power: 10
Hi, Cordwainer -- sorry to hear about your Raynauds. Peripheral circulation problems can be downright painful. Several rock climbers I know -- mostly women -- have faced similar issues: cold stone will drain the heat right out of your fingers. Some found relief thru steroidal treatments -- the capillary clamp-down seems to be hormonally triggered -- and thru meditation. That latter sounds goofy, but Raynauds does correlate with limbic responses to stress or anxiety, and meditation has been shown to reduce stress hormones in the blood. So if you have an interest in that line, a regimen of yoga or meditation or tai chi or deep breathing exercises may yield surprising results.

Other climbers have found hot-plunge therapy beneficial in the short- to medium-term. They basically stick their hands (& or feet) into water heated right to the edge of pain. Start at 'very warm' and ratchet up the water temps over time. After a few minutes, pull out your digits, let em cool to room temp, and plunge em again. The intent is to 'teach' your blood vessels to dilate by engorging them with blood over and over. Some think this cycling encourages greater elasticity in the vessel walls. It definitely increases general blood flow to the tissues in your hands and feet, which can accelerate healing and cause more capillaries to grow. Your hands should look bright pink when you pull them out of the hot water -- a sign blood flow has been amped up. Google "Murray Hamlet Raynaud's". And here's a couple informed articles:

Beyond cold feet: painfully cold fingers and toes may signal Raynaud's disease | Vegetarian Times | Find Articles at BNET

Peripheral circulation and cold adaptation in Raynaud's phenomenon - Medical Anthropology | Townsend Letter for Doctors and Patients | Find Articles at BNET

Climbers with tendinitis problems do something similar but alternate hot plunges with ice baths -- again, the idea is to increase blood flow by repeatedly 'calling' for it via temperature variation. Probably the ice baths are not such a good idea w/ Raynauds. Usual advice: ask a doctor if they foresee any harm from experimenting with these techniques before proceeding. Best of luck!

Buccaneer18, Grainnia
SJ21, Diarmuid
Albin Ballad 30, Fionn
bobmcgov is offline  
Quote Quick Reply Share with Facebook
post #13 of 13 Old 01-04-2011
Join Date: Apr 2006
Posts: 12,346
Thanks: 6
Thanked 181 Times in 178 Posts
Rep Power: 13
Cordwainer, I would suggest that keeping warm is literally a matter of life and death for many sports and pursuits, and that the doc who said "give up sailing" needs to get his head out of his, ahem.

Anyone who pursues winter sports can tell you that hypothermia and frostbite can kill. And, how to avoid them by eating properly, dressing properly, etc.

A wool watch cat to keep the head warm and preserve body heat. Wool or silk undercloths to keep the core warm and dry, and allow heat to get out to the limbs. And here in the US, Graber? Grabber? brand heat packs, which generate heat when exposed to air. They make a wide range now, including packs that slip into your gloves and boots, packs that stick to your clothes, great way to supplement body heat when you need it. Then there are also electric socks and gloves and vests, often sold to the snow ski and motorcycling markets.

Give up sailing? Hell no, just sail warm and dry. That's easily possible.
hellosailor is offline  
Quote Quick Reply Share with Facebook

Quick Reply

By choosing to post the reply above you agree to the rules you agreed to when joining Sailnet.
Click Here to view those rules.

Register Now

In order to be able to post messages on the SailNet Community forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
Please note: After entering 3 characters a list of Usernames already in use will appear and the list will disappear once a valid Username is entered.

User Name:
Please enter a password for your user account. Note that passwords are case-sensitive.


Confirm Password:
Email Address
Please enter a valid email address for yourself.

Email Address:


Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is On
Trackbacks are On
Pingbacks are On
Refbacks are On

For the best viewing experience please update your browser to Google Chrome