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  Topic Review (Newest First)
01-03-2011 08:12 PM
glassdad GO SAILING!!! Cover up, wear a hat and sunscreen and go.

We lost my wife's aunt to melanoma four years ago. She had a spot removed from her leg and was told that she was ok. Her first sign that it had spread was when she had a seizure. The doctors did a brain scan and found that the melanoma had spread to the brain and was causing swelling. By then it was too late for treatment.

This may not happen to to you. Hopefully it will not. You need to take precautions and minimize the exposure but you need to live.

Live life like you don't know the future (you don't). Live life, go sailing!
01-03-2011 02:45 PM

For the great thoughts everyone! They have helped more than you all can imagine!

I will not ever give up sailing! I just want to do it safely and avoid these darn Doctors! (Apologies to all darn Doctors)

It looks like they are going to take out one of my lymph nodes...

(apparently we have more than one)

so I assume they will take out the 'bad' one that makes me procrastinate and causes all the trouble in my life!

I am hopeful that the other lymph nodes will take notice, see what has happened to their 'bad' brother, and straighten up & fly right...

A note on MOHS surgery. If you are a good candidate for it, it works VERY well. They just don't know until they get in there and look around to see if they got it all. Apparently in my case where they cut was an issue, melanoma in that location tends to wander and that seems to have happened.
01-01-2011 10:41 PM
eherlihy Tim,

I wish you well. I don't understand your statistics, however.
Mohs surgery, also known as chemosurgery, created by a general surgeon, Dr. Frederic E. Mohs, is microscopically controlled surgery used to treat common types of skin cancer. It is one of the many methods of obtaining complete margin control during removal of a skin cancer (CCPDMA complete circumferential peripheral and deep margin assessment.) using frozen section histology. CCPDMA or Mohs surgery allows for the removal of a skin cancer with very narrow surgical margin and a high cure rate.

The cure rate with Mohs surgery cited by most studies is between 97% and 99.8% for primary basal cell carcinoma, the most common type of skin cancer. Mohs procedure is also used for squamous cell carcinoma, but with a lower cure rate. Two isolated studies reported cure rate for primary basal cell cancer as low as 95% and 96% (see discussion on "Why is the Cure Rate so Varied?). Recurrent basal cell cancer has a lower cure rate with Mohs surgery, more in the range of 94%. It has been used in the removal of melanoma-in-situ (cure rate 77% to 98% depending on surgeon), and certain types of melanoma (cure rate 52%). Another study of melanoma-in-situ revealed Mohs cure rate of 95% for frozen section Mohs, and 98 to 99% for fixed tissue Mohs method.

Other indications for Mohs surgery include dermatofibrosarcoma protuberans, keratoacanthoma, spindle cell tumors, sebaceous carcinomas, microcystic adnexal carcinoma, merkel cell carcinoma, Pagets's disease of the breast, atypical fibroxanthoma, leimyosarcoma, and angiosarcoma. Because the Mohs procedure is micrographically controlled, it provides precise removal of the cancerous tissue, while healthy tissue is spared. Mohs surgery is relatively expensive when compared to other surgical modalities. However, in anatomically important areas (eyelid, nose, lips), tissue sparing and low recurrence rate makes it a procedure of choice by many physicians.
- Wikipedia

Keep this in perspective, and LIVE YOUR LIFE! If that means sailing - get to it man!
01-01-2011 08:44 PM
Ilenart Tim,

I was diagnosed with Luekaemia about 18 months ago with a prognosis a lot less than 50%! Still here and just brought a new boat a couple of months ago and undertaking / planning lots of sailing.

One important issue is is your state of mind and I cannot emphasis how important it is to keep positive. Otherwise you will not only drag yourself down, you will also drag your family and friends down as well. Then everyone will be moping around and no one will enjoy themselves. Is a lot better to keep positive and you will find you will lift the spirits of the people around you.

I have also worked out that some doctors are optimists and some doctors are pessimists. The reality is no one can accurately predict what happens with cancer and a 50/50 diagnosis probably means a range of 40%-60% or even 30%-70%. So don't worry about the odds, just get on with enjoying yourself.

Lots of good advise about covering up. One of the drugs I am on makes me sensitive to the sun, so I have brought lots of long sleeve sailing shirts rated 50 plus. I also found that wide brimmed hats do not work very well whilst sailing as the brim tends to fold back with the wind. I have gone for caps with a rigid peak and an Arab style cloth sewn in the back to protect my neck.

Like others have said, none of us are getting out of here alive, so make sure you enjoy yourself!

01-01-2011 10:19 AM
WanderingStar You can live, you certainly can sail. Like most adults, I've lost family (my brother, my aunt, my stepmother) to cancer. I also have family that have lived through grim diagnoses.
My Dad sails with skin cancer, very carefully. If you are really worried, sail at night.
Among all the nonsense, people are most important. Sending you good wishes and prayers. Peace.
12-31-2010 08:10 PM
GaryHLucas My boat has been on the hard for the past two years. It is still all apart after major repairs. Two months ago I was diagnosed with prostate cancer. Since then I've been tested up the wazoo, literally! I am starting to think doctors are like dogs, wanting to sniff my butt every time I meet them! I will be having surgery at the end of January or into February. Recovery will take weeks to months I am told.

So I promptly hired someone to put my boat back together. It is going to cost money I never intended to spend. But I AM GOING SAILING in the spring with my very best buddy, my 7 year old grandson that I spend all my free time with! My boat is very stable and easy to sail, all lines go to the cockpit, I have a tillerpilot, and friends that know how to sail.

Gary H. Lucas
12-31-2010 07:02 PM
mike dryver Hello Mj i had MOHS surg. twice in April and May for same spot doc. told me to wear spf 30 and big brim hats. i am fair skinned, blue eyed so it's in my genes according to the doc. iasked him if i should give up sailing and said absolutely not just make sure i wear protection. i've been having stuff burned off for about 3yrs and this is the only thing the docs. tell me. so like every one else on this thread, just be real careful and get on with it. because of where my growth was i don't sit idle behind the wheel anymore i am constantly moving around the boat. when i sweat i put on more screen. good luck mike
12-31-2010 06:47 PM
Originally Posted by southerncross31 View Post
Modern society, and our messed up priorities and chemicals are what lead to disease and death.
The Black Plague was, apparently, just a rumour.
12-31-2010 06:11 PM
southerncross31 I wholeheartedly agree rmeador! I haven't used it since my mom made me do so some 25 years ago. I am out in the sun all the time. Sunlight is great for the body and mind! Sunscreen is made in a factory in china or new jersey and causes cancer! So do the dyes in clothing... chemicals in household cleaners.... cell phones .. computers and tv's and epoxy! How can any of us determine what is good or bad when we live in a society that promotes substance abuse, violence and fear. Very little of the information we get is un-biased and we are surrounded by mind control in the form of media! All you have to do is turn on any cable channel..... even the so called history and discovery channels. All you will see is environmental destruction, violence, human self absorption and shear ignorance. Modern society, and our messed up priorities and chemicals are what lead to disease and death. Within each one of us lies a very untapped gift that we have lost connection with since major corporations have taken over our lives. Some of you might think i am some whako.....but watch the reaction your kids would have to loosing electricity, tv and the internet for just 1 month ( let alone if the power goes out for a few hours)! None of us really know who we are with all of these distractions around us. I used to trade stocks on my computer and sell real estate for a living.... i ended up the hospital! I have 2 kids to be here for..... not work, my boss or anyone else. I now live without any technology in my life (except for sailnet)... no cell, no media, tv or anything else. The only time i log onto the internet is to check the weather and to log onto sailnet (at non home locations) because of all of the great advice. Aside of that all i have is a landline, corded phone! I love my life, my kids and the dream i have of removing them from this quagmire of a lifestyle! My grey hairs have literally gone away!
12-31-2010 03:25 PM
rmeador I burn very easily, and I've used very heavy sunscreen (SPF 50 or higher) to protect myself most of my life. Even with such sunscreen, I would still often burn, so I took to relying more on covering myself than sunscreen. While I was in St Thomas learning to sail last year, the captain/instructor told me about a dermatologist he had on board for another lesson who never wears sunscreen. The dermatologist's theory is that the sunscreen causes more cancer than the sun does. Sunscreen also seems to lead to vitamin D deficiency (which itself may cause skin cancer). I did a bit of research when I got home and it was enough to convince me. I now rarely use sunscreen, and try to cover up instead. I also uncover and get a little sun once in a while in the early morning or late afternoon, when the risk of burns is negligible, since my thinking is that humans didn't evolve to be moles always hiding from the sun.

Sunscreen controversy - Wikipedia, the free encyclopedia
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